@Article{信息:doi 10.2196 / / jmir。4887,作者="Meyer, Ashley N.D and Longhurst, Christopher A and Singh, Hardeep",标题="对未确诊疾病患者的众包诊断:CrowdMed的评估",期刊="J Med Internet Res",年="2016",月="Jan",日="14",卷="18",数="1",页数="e12",关键词="众包;诊断;诊断错误;病人安全;背景:尽管看了多名医生,许多患者仍未确诊。一个新的在线项目CrowdMed旨在利用“大众的智慧”,让患者有机会提交他们的病例,并与病例解决人员互动,以获得诊断的可能性。目的:描述CrowdMed并提供其影响的独立评估。方法:患者将他们的病例在线提交到CrowdMed,病例解决人员注册帮助诊断患者。病例解决者试图解决患者的诊断困境,并经常与患者进行在线互动讨论,包括交换额外的诊断细节。 At the end, patients receive detailed reports containing diagnostic suggestions to discuss with their physicians and fill out surveys about their outcomes. We independently analyzed data collected from cases between May 2013 and April 2015 to determine patient and case solver characteristics and case outcomes. Results: During the study period, 397 cases were completed. These patients previously visited a median of 5 physicians, incurred a median of US {\$}10,000 in medical expenses, spent a median of 50 hours researching their illnesses online, and had symptoms for a median of 2.6 years. During this period, 357 active case solvers participated, of which 37.9{\%} (132/348) were male and 58.3{\%} (208/357) worked or studied in the medical industry. About half (50.9{\%}, 202/397) of patients were likely to recommend CrowdMed to a friend, 59.6{\%} (233/391) reported that the process gave insights that led them closer to the correct diagnoses, 57{\%} (52/92) reported estimated decreases in medical expenses, and 38{\%} (29/77) reported estimated improvement in school or work productivity. Conclusions: Some patients with undiagnosed illnesses reported receiving helpful guidance from crowdsourcing their diagnoses during their difficult diagnostic journeys. However, further development and use of crowdsourcing methods to facilitate diagnosis requires long-term evaluation as well as validation to account for patients' ultimate correct diagnoses. ", issn="1438-8871", doi="10.2196/jmir.4887", url="//www.mybigtv.com/2016/1/e12/", url="https://doi.org/10.2196/jmir.4887", url="http://www.ncbi.nlm.nih.gov/pubmed/26769236" }
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