@Article{信息:doi 10.2196 / / jmir。4818,作者="Groen, Wim G和Kuijpers, Wilma和Oldenburg, Hester SA和Wouters, Michel WJM和Aaronson, Neil K和van Harten, Wim H",标题="通过信息技术为癌症幸存者赋权:综合综述",期刊="J Med Internet Res",年="2015",月="11",日="27",卷="17",数="11",页数="e270",关键词="综述;肿瘤;互联网;技术;健康教育;慢性疾病;背景:患者赋权可能是加强癌症幸存者作用和减轻医疗负担的有效方法。然而,它并没有很好地概念化,尤其是在肿瘤学领域。此外,目前尚不清楚信息技术(it)服务在多大程度上有助于增强癌症幸存者的权能。 Objective: We aim to define the conceptual components of patient empowerment of chronic disease patients, especially cancer survivors, and to explore the contribution of existing and new IT services to promote empowerment. Methods: Electronic databases were searched to identify theoretical and empirical articles regarding empowerment. We extracted and synthesized conceptual components of patient empowerment (ie, attributes, antecedents, and consequences) according to the integrated review methodology. We identified recent IT services for cancer survivors by examining systematic reviews and a proposed inventory of new services, and we related their features and effects to the identified components of empowerment. Results: Based on 26 articles, we identified five main attributes of patient empowerment: (1) being autonomous and respected, (2) having knowledge, (3) having psychosocial and behavioral skills, (4) perceiving support from community, family, and friends, and (5) perceiving oneself to be useful. The latter two were specific for the cancer setting. Systematic reviews of IT services and our additional inventory helped us identify five main categories: (1) educational services, including electronic survivorship care plan services, (2) patient-to-patient services, (3) electronic patient-reported outcome (ePRO) services, (4) multicomponent services, and (5) portal services. Potential impact on empowerment included knowledge enhancement and, to a lesser extent, enhancing autonomy and skills. Newly developed services offer promising and exciting opportunities to empower cancer survivors, for instance, by providing tailored advice for supportive or follow-up care based on patients' input. Conclusions: We identified five main components of empowerment and showed that IT services may especially contribute to empowerment by providing knowledge. The components of empowerment could be used to develop IT services for cancer survivors. It is important to take into account patients' needs, follow up on these needs, and create a service that is attractive and easy to use. ", issn="1438-8871", doi="10.2196/jmir.4818", url="//www.mybigtv.com/2015/11/e270/", url="https://doi.org/10.2196/jmir.4818", url="http://www.ncbi.nlm.nih.gov/pubmed/26614438" }
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