@Article{信息:doi 10.2196 / / jmir。3338,作者=“Meylakhs, Peter和Rykov, Yuri和Koltsova, Olessia和Koltsov, Sergey”,标题=“俄罗斯社交网络服务上的艾滋病否认主义在线社区:与新人互动的模式和说服的修辞策略”,期刊=“J Med Internet Res”,年=“2014”,月=“11”,日=“17”,卷=“16”,数=“11”,页=“e261”,关键词=“消费者健康信息;互联网;网络社区;艾滋病否定主义者;互联网卫生信息质量;netnography;背景:社交媒体的兴起被证明是获得性免疫缺陷综合征(艾滋病)否定主义运动(以在线社区的形式)扩张的沃土。虽然有大量文献致力于反驳艾滋病否认者的观点,但缺乏研究探索艾滋病否认者与外部环境互动的在线社区。目的:我们探索了三个研究领域:(1)新来者加入艾滋病否认主义者社区的原因,(2)社区与新来者的互动模式,以及(3)否认主义者用于说服他们的观点的真实性的修辞策略。 Methods: We studied the largest AIDS-denialist community on one of the most popular social networking services in Russia. We used netnography as a method for collecting data for qualitative analysis and observed the community for 9 months (at least 2-3 times a week). While doing netnography, we periodically downloaded community discussions. In total, we downloaded 4821 posts and comments for analysis. Grounded theory approach was used for data analysis. Results: Most users came to the community for the following reasons: their stories did not fit the unitary picture of AIDS disease progression translated by popular medical discourse, health problems, concern about HIV-positive tests, and desire to dissuade community members from false AIDS beliefs. On the basis of strength in AIDS-denialist beliefs, we constructed a typology of the newcomers consisting of three ideal-typical groups: (1) convinced: those who already had become denialists before coming to the group, (2) doubters: those who were undecided about the truth of either human immunodeficiency virus (HIV) science theory or AIDS-denialist theory, and (3) orthodox: those who openly held HIV science views. Reception of a newcomer mainly depended on the newcomer's belief status. Reception was very warm for the convinced, cold or slightly hostile for the doubters, and extremely hostile or derisive for the orthodox. We identified seven main rhetorical strategies of persuasion used by the denialists on the ``undecided''. Conclusions: Contrary to the widespread public health depiction of AIDS denialists as totally irrational, our study suggests that some of those who become AIDS denialists have sufficiently reasonable grounds to suspect that ``something is wrong'' with scientific theory, because their personal experience contradicts the unitary picture of AIDS disease progression. Odd and inexplicable practices of some AIDS centers only fuel these people's suspicions. We can conclude that public health practitioners' practices may play a role in generating AIDS-denialist sentiments. In interactions with the newcomers, the experienced community members highlighted the importance of personal autonomy and freedom of choice in decision making consistent with the consumerist ideology of health care. The study findings suggest that health care workers should change a one-size-fits-all mode of counseling for a more complex and patient-tailored approach, allowing for diversity of disease progression scenarios and scientific uncertainty. ", issn="1438-8871", doi="10.2196/jmir.3338", url="//www.mybigtv.com/2014/11/e261/", url="https://doi.org/10.2196/jmir.3338" }
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