@Article{信息:doi 10.2196 / / jmir。2466，作者=" marry, Ruth Ann和Salter, Amber R和Tyry, Tuula和Fox, Robert J和Cutter, Gary R"，标题="多发性硬化症患者健康信息的首选来源:信任程度和信息寻求"，期刊="J医学互联网研究"，年="2013"，月="四月"，日="30"，卷="15"，数="4"，页数="e67"，关键词="多发性硬化症;互联网;社交媒体;信任;背景:有效的健康沟通对于知情的决策是重要的，然而，对于多发性硬化症(MS)患者所使用的信息源的范围、对这些信息源的感知信任，或者根据患者的特征如何变化，我们所知甚少。目的:我们旨在调查MS患者使用的健康信息来源，他们对健康信息来源的偏好，以及对这些信息来源的信任程度。我们还旨在评估这些发现如何根据参与者的特征而变化。方法:2011年，北美多发性硬化症研究委员会(NARCOMS)登记处的参与者使用2007年健康信息全国趋势(HINTS)调查中选定的问题被问及他们的健康信息来源。结果:在12,974名合格参与者中，66.18%(8586/12,974)填写了问卷。 Mass media sources, rather than interpersonal information sources, were the first sources used by 83.22{\%} (5953/7153) of participants for general health topics and by 68.31{\%} (5026/7357) of participants for MS concerns. Specifically, the Internet was the first source of health information for general health issues (5332/7267, 73.40{\%}) and MS (4369/7376, 59.23{\%}). In a logistic regression model, younger age, less disability, and higher annual income were independently associated with increased odds of use of mass media rather than interpersonal sources of information first. The most trusted information source was a physician, with 97.94{\%} (8318/8493) reporting that they trusted a physician some or a lot. Information sought included treatment for MS (4470/5663, 78.93{\%}), general information about MS (3378/5405, 62.50{\%}), paying for medical care (1096/4282, 25.59{\%}), where to get medical care (787/4282, 18.38{\%}), and supports for coping with MS (2775/5031, 55.16{\%}). Nearly 40{\%} (2998/7521) of participants had concerns about the quality of the information they gathered. Conclusions: Although physicians remain the most trusted source of health information for people with MS, the Internet is the first source of health information for most of them. This has important implications for the dissemination of health information. ", issn="1438-8871", doi="10.2196/jmir.2466", url="//www.mybigtv.com/2013/4/e67/", url="https://doi.org/10.2196/jmir.2466", url="http://www.ncbi.nlm.nih.gov/pubmed/23635393" }