@Article{信息:doi 10.2196 / / jmir。1847,作者=“Tercyak, Kenneth P and Mays, Darren and DeMarco, Tiffani A and Sharff, McKane E and Friedman, Susan”,标题=“遗传性乳腺癌患者的心理教育干预的在线社区需求评估结果”,期刊=“J Med Internet Res”,年=“2012”,月=“Jan”,日=“18”,卷=“14”,数=“1”,页=“e15”,关键词=“乳腺癌;遗传性癌症;社会支持;心理教育;背景:有患遗传性乳腺癌/卵巢癌风险的妇女的配偶和伴侣(“伴侣”)是其家庭支持的主要来源。然而,对于伴侣是否需要心理教育干预来提高他们的癌症风险知识、应对和支持角色功能,我们知之甚少。目的:了解遗传性乳腺癌存活女性伴侣心理教育干预需求的类型和范围,并了解互联网等沟通渠道在满足这一需求方面的潜在作用。方法:我们对最初通过致力于遗传性乳腺癌的在线社区组织评估的伴侣需求进行了二次数据分析。伴侣的人口统计学特征、心理教育需求和使用各种沟通渠道的可能性与其他构念一起被评估。 Analyses examined commonly-occurring clusters of likely intervention use and by communication channel. Results: Partners (n =143) endorsed a moderately high level of need for psychoeducation and did so across multiple content areas (e.g., role functioning, decision making, communication, intimacy). Factor analysis identified three commonly-preferred communication channels: 1) self-help materials, 2) online interactions, and 3) interpersonal interactions. A cluster analysis among these factors identified three groups of partners based on their likelihood of psychoeducational intervention use (low [18{\%}], moderate [55{\%}], and high [27{\%}] users). In a covariate-adjusted MANOVA, moderate and high intervention users reported significantly greater need for psychoeducation compared to low users (F2,132 = 9.15, P < .001). Conclusions: A majority of assessed partners perceived a need for psychoeducational interventions surrounding hereditary breast cancer risk. Internet-based, interactive resources may be an efficient mechanism to reach large numbers of partners with tailored content. Research is warranted to inform the design and deployment of these resources to ensure quality and high impact, and ultimately to examine ways to integrate these resources into clinical care. ", issn="1438-8871", doi="10.2196/jmir.1847", url="//www.mybigtv.com/2012/1/e15/", url="https://doi.org/10.2196/jmir.1847", url="http://www.ncbi.nlm.nih.gov/pubmed/22257650" }
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