@文章{信息:doi/10.2196/23990,作者="Krej{\v{c}}{\'i}, Denisa and Karolyi, Mat{\v{e}} and Pehalov{\'a}, Lucie and {\v{S}}{\v{c}}avnick{\'y}, Jakub and Zapletalov{\'a}, Michaela and Katinov{\'a}, Ivana and {\v{S} t{\v{e}}rba, Jaroslav and Star{\'y}, Jan and {\v{S}}najdrov{\'a}, Lenka and Komenda, Martin and Du{\v{S}} ek, Ladislav",标题="捷克儿童癌症信息系统的开发:数据分析与交互式可视化”,期刊=“JMIR公共卫生监测”,年=“2021”,月=“6”,日=“29”,卷=“7”,数=“6”,页=“e23990”,关键词=“癌症流行病学”;孩子;数据可视化;背景:了解人群的癌症负担、其时间趋势以及国际比较的可能性是癌症项目的重要起点。直到最近,捷克共和国还不存在描述儿童和青少年癌症流行病学的可靠交互式工具。目的:本研究的目标是开发一个名为捷克儿童癌症信息系统(CCCIS)的新门户网站,该门户网站将提供捷克共和国儿童癌症流行病学的信息。方法:儿童癌症数据来自捷克国家癌症登记处。这些数据是使用儿童癌症患者的临床数据库进行验证的,随后与国家住院患者登记册的数据和死亡证明的数据相结合。然后,这些经过验证的数据用于确定1994年至2016年期间诊断的0至19岁儿童癌症患者的发病率和生存率(N=9435)。 Data from death certificates were used to monitor long-term mortality trends. The technical solution is based on the robust PHP development Symfony framework, with the PostgreSQL system used to accommodate the data basis. Results: The web portal has been available for anyone since November 2019, providing basic information for experts (ie, analyses and publications) on individual diagnostic groups of childhood cancers. It involves an interactive tool for analytical reporting, which provides information on the following basic topics in the form of graphs or tables: incidence, mortality, and overall survival. Feedback was obtained and the accuracy of outputs published on the CCCIS portal was verified using the following methods: the validation of the theoretical background and the user testing. Conclusions: We developed software capable of processing data from multiple sources, which is freely available to all users and makes it possible to carry out automated analyses even for users without mathematical background; a simple selection of a topic to be analyzed is required from the user. ", issn="2369-2960", doi="10.2196/23990", url="https://publichealth.www.mybigtv.com/2021/6/e23990", url="https://doi.org/10.2196/23990", url="http://www.ncbi.nlm.nih.gov/pubmed/34185010" }
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