@文章{信息:doi/10.2196/15106，作者="Bird, Marissa和Li, Lin和Ouellette, Carley和Hopkins, Kylie和McGillion, Michael H和Carter, Nancy"，标题="使用同步数字医疗技术照顾有特殊医疗需求的儿童及其家庭:范围审查"，期刊="JMIR儿科家长"，年="2019"，月=" 11月"，日="21"，卷="2"，数="2"，页="e15106"，关键词="儿科;范围审查;数字健康;有特殊保健需要的儿童;哮喘;先天性心脏病;姑息治疗;背景:使用同步数字医疗技术为有特殊医疗需求的儿童(患有慢性身体、行为、发育或情绪状况，同时资源使用率高)及其家庭提供护理，已显示出改善结果和增加这一医疗脆弱和资源密集型人群获得护理的希望。然而，目前还没有对同步家庭数字健康干预措施的各种模式进行全面描述，迄今为止也没有对此类干预措施的影响进行总结。目的:我们旨在描述在有特殊医疗需求的儿科人群中使用的同步家庭数字健康的各种模型，它们的结果和实施障碍。 Methods: A systematic scoping review of the literature was conducted, guided by the Arksey and O'Malley Scoping Review Framework. MEDLINE, CINAHL, and EMBASE databases were searched from inception to June 2018, and the reference lists of the included systematic reviews and high-impact journals were hand-searched. Results: A total of 38 articles were included in this review. Interventional articles are described as feasibility studies, studies that aim to provide direct care to children with special health care needs, and studies that aim to support family members to deliver care to children with special health care needs. End-user involvement in the design and implementation of studies is evaluated using a human-centered design framework, and factors affecting the implementation of digital health programs are discussed in relation to technological, human, and systems factors. Conclusions: The use of digital health to care for children with special health care needs presents an opportunity to leverage the capacity of technology to connect patients and their families to much-needed care from expert health care providers while avoiding the expenses and potential harms of the hospital-based care system. Strategies to scale and spread pilot studies, such as involving end users in the co-design techniques, are needed to optimize digital health programs for children with special health care needs. ", issn="2561-6722", doi="10.2196/15106", url="http://pediatrics.www.mybigtv.com/2019/2/e15106/", url="https://doi.org/10.2196/15106", url="http://www.ncbi.nlm.nih.gov/pubmed/31750840" }