TY - JOUR AU - Chaar, Dima AU - Shin, Ji Youn AU - Mazzoli, Amanda AU - Vue, Rebecca AU - Kedroske, Jacob AU - Chappell, Grant AU - Hanauer, David A AU - Barton, Debra AU - Hassett, Afton L AU - Choi, Sung Won PY - 2019 DA - 2019/10/24 TI -用于进行造血干细胞移植患者的移动健康应用程序(路线图2.0):定性研究对家庭照顾者的观点和设计考虑乔- JMIR Mhealth Uhealth SP - e15775六世- 7 - 10 KW -看护者KW -同种异体造血干细胞移植千瓦家里采访KW -用户体验KW -移动健康应用AB -背景:造血干细胞移植(HCT),也称为血液和骨髓移植(BMT),是一个高风险,但潜在的治疗治疗癌症和癌的条件。BMT路线图(Roadmap 1.0)是一个移动健康应用程序，是作为一个面向家庭护理人员的工具开发的，用于提供有关住院HCT患者健康状况的信息需求。目的:本研究探讨了接受HCT患者的家庭照顾者的观点和看法，以及他们对进一步技术发展和将BMT路线图扩展到门诊环境(称为路线图2.0)的投入。方法:对24名家庭照顾者进行半结构化定性访谈。问题来自现有文献，加上先前在医院进行的深入观察和访谈，以探讨研究目标。参与者是在HCT患者的常规门诊预约中招募的，所有访谈都是在参与者的家中进行的，路线图2.0计划在家中使用。专题分析使用从我们之前的研究中获得的一套一致的代码进行。同时纳入了新出现的编码，并通过编码和数据收集的迭代循环来完善编码结构。结果:通过定性分析，我们发现了四个主要主题:(1)与平衡护理职责相关的压力; (2) learning and adapting to new routines (resilience); (3) balancing one’s own needs with the patient’s needs (insight); and (4) benefits of caregiving. When caregivers were further probed about their views on engagement with positive activity interventions (ie, pleasant activities that promote positive emotions and well-being such as expressing gratitude or engaging in activities that promote positive thoughts, emotions, and behaviors), they preferred a “menu” of positive activities to help support caregiver health and well-being. Conclusions: This study involved family caregivers as participants in the development of new components for Roadmap 2.0. Our research provided a further understanding of the many priorities that hematopoietic stem cell transplant family caregivers face while maintaining balance in their lives. Their schedules can often be unpredictable, even more so once the patient is discharged from the hospital. Our findings suggest that expanding Roadmap 2.0 into the outpatient setting may provide critical caregiver support and that HCT caregivers are interested in and willing to engage in positive activities that may enhance well-being and attenuate the stress associated with caregiving. International Registered Report Identifier (IRRID): RR2-10.2196/resprot.4918 SN - 2291-5222 UR - http://mhealth.www.mybigtv.com/2019/10/e15775/ UR - https://doi.org/10.2196/15775 UR - http://www.ncbi.nlm.nih.gov/pubmed/31651402 DO - 10.2196/15775 ID - info:doi/10.2196/15775 ER -