急性淋巴细胞白血病患儿家长的健康支持护理干预研究卡塔尔世界杯8强波胆分析准实验设计前后研究:王a，王敬婷，Doris，沈南平，Geng南平，吴朝晖，吴福蕾，沈敏，张晓燕，谢晓燕，王安伟，袁琳，长荣，复旦大学护理学院，上海市丰林路305号8号楼403室，邮编:20032,86 02164431803yuancr@fudan.edu.cn %K急性淋巴细胞白血病%K有效性%K mHealth %K手机%K父母%K支持性护理%D 2018 %7 19.11.2018 %9背景:急性淋巴细胞白血病(acute lymphoblastic leukemia, ALL)是儿童最常见的恶性肿瘤。照顾患有ALL的孩子对父母来说是一个挑战。为满足父母的需求，制定了一项移动保健(mHealth)支持性护理干预措施。目的:本研究旨在评估移动健康支持护理干预在情绪困扰、社会支持、护理负担、疾病不确定性、生活质量和知识方面的潜在有效性。方法:2015年6月至2016年1月进行准实验设计前后研究。共有101名家长参加了这项研究，其中观察组50名，干预组51名。观察组家长接受标准健康教育，随访3个月。干预组的家长除了接受标准的健康教育外，还接受了移动健康支持护理干预。 The intervention consisted of 2 parts—an Android smartphone app “Care Assistant (CA)” and a WeChat Official Account. The CA with 8 modules (Personal Information, Treatment Tracking, Family Care, Financial and Social Assistance, Knowledge Center, Self- Assessment Questionnaires, Interactive Platform, and Reminders) was the main intervention tool, whereas the WeChat Official Account was supplementary to update information and realize interaction between parents and health care providers. Data of parents’ social support, anxiety, depression, care burden, uncertainty in illness, quality of life, their existing knowledge of ALL and care, and knowledge need were collected before and after the 3-month study period in both groups. For the intervention group, parents’ experience of receiving the intervention was also collected through individual interviews. Results: Overall, 43 parents in the observation group and 49 in the intervention group completed the study. Results found that the intervention reduced parents’ anxiety (Dint(Post-Pre)=−7.0 [SD 13.1], Dobs(Post-Pre)=−0.4 [SD 15.8], t90=−2.200, P=.03) and uncertainty in illness (Dint(Post-Pre)=−25.0 [SD 8.2], Dobs(Post-Pre)=−19.8 [SD 10.1], t90=−2.761, P=.01), improved parents’ social function (Dint(Post-Pre)=9.0 [SD 32.8], Dobs(Post-Pre)=−7.5 [SD 30.3], t90=2.494, P=.01), increased parents’ knowledge of ALL and care (Dint(Post-Pre)=28.4 [SD 12.4], Dobs(Post-Pre)=17.2 [SD 11.9], t90=4.407, P<.001), and decreased their need for knowledge (Dint(Post-Pre)=−9.9 [SD 11.6], Dobs(Post-Pre)=−1.9 [SD 6.4], t90=−4.112, P<.001). Qualitative results showed that parents were satisfied with the intervention and their role in the caregiving process. Conclusions: The mHealth intervention in supporting parents of children with ALL is effective. This study is informative for other future studies on providing mHealth supportive care for parents of children with cancer. %M 30455166 %R 10.2196/mhealth.9981 %U http://mhealth.www.mybigtv.com/2018/11/e195/ %U https://doi.org/10.2196/mhealth.9981 %U http://www.ncbi.nlm.nih.gov/pubmed/30455166