@文章{信息:doi/10.2196/12442，作者=“Rudolf, Isa和Pieper, Katharina和Nolte, Helga和Junge, Sibylle和Dopfer, Christian和Sauer-Heilborn, Annette和Ringshausen, Felix C和T{\“u}mmler, Burkhard和von Jan, Ute和Albrecht, Urs-Vito和Fuge, Jan和Hansen, Gesine和Dittrich, Anna-Maria”，标题=“对患有囊性纤维化的青少年和年轻人的移动应用程序的评估:，期刊=“JMIR Mhealth Uhealth”，年=“2019”，月=“11月”，日=“21”，卷=“7”，号=“11”，页数=“e12442”，关键词=“手机;手机app;移动健康;自我管理;青春期;背景:囊性纤维化(CF)仍然是青少年和年轻人中最常见的限制生命的慢性肺部疾病。CF的治疗需要大量的治疗时间投资，以减缓肺功能衰退的进展，肺功能衰退是导致发病率和死亡率的最重要因素。由于治疗负担高，且在不坚持的情况下缺乏直接的健康后果，CF患者的依从性具有挑战性。肺功能下降在12 - 24岁的过渡阶段尤为明显。 The improvement of self-management and self-responsibility and independence from parents and desire for normalcy are conflicting aspects for many adolescents with CF, which influence adherence to the time-consuming pulmonary therapy. Mobile health (mHealth) care apps could help to support self-management and independence and thereby reconcile seemingly conflicting goals to improve adherence, quality of life, and ultimately CF life expectancy. Objective: This study aimed to (1) assess user behavior and satisfaction among adolescents and young adults with CF over an observation period of three months using an mHealth app; (2) identify areas of improvement for this mHealth app; and (3) compare overall and disease-specific satisfaction, lung function, and anthropometry before and after using the mHealth app. Methods: A total of 27 adolescents and young adults with CF (age range 12-24 years, mean age 16 years, SD 3 years; 14 females, 11 males) used a free mHealth app for three months of whom 25 provided questionnaire data for analysis at the end of the study. Data collection was carried out using questionnaires on usage characteristics and life satisfaction, and standardized assessment of lung function and anthropometry. Results: The use of the reminder function for medication declined from 70{\%} (15/21) of the participants at week 4 to 65{\%} (13/20) at week 8 of the observation period. At the end of the study, only 17{\%} (4/23) of the participants wanted to continue using the app. Nevertheless, 56{\%} (14/25) of participants saw the mobile app as a support for everyday life. Potential improvements targeting hedonistic qualities were identified to improve mHealth app adherence. Comparisons of satisfaction with different life aspects hinted at improvements or stabilization for the subitem respiration and the subitem lack of handicap by CF, suggesting that app use might stabilize certain CF-specific aspects of the weighted satisfaction with life. Lung function and anthropometry were not affected consistently. Conclusions: Most of the patients did not want to continue using the app after the study period. Only a few CF-specific aspects of weighted life satisfaction were possibly stabilized by the mHealth app; clinical parameters were not affected. Adaptation of the functions to adolescent-specific needs could improve the long-term use and thus positively affect the disease course. ", issn="2291-5222", doi="10.2196/12442", url="https://mhealth.www.mybigtv.com/2019/11/e12442", url="https://doi.org/10.2196/12442", url="http://www.ncbi.nlm.nih.gov/pubmed/31750841" }