@文章{信息:doi/10.2196/15775，作者=“Chaar, Dima和Shin, Ji Youn和Mazzoli, Amanda和Vue, Rebecca和Kedroske, Jacob和Chappell, Grant和Hanauer, David A和Barton, Debra和Hassett, Afton L和Choi, Sung Won”，标题=“用于接受造血干细胞移植的患者的移动健康应用程序(路线图2.0):家庭照护者视角与设计考量的定性研究”，期刊=“JMIR Mhealth Uhealth”，年=“2019”，月=“10”，日=“24”，卷=“7”，数=“10”，页=“e15775”，关键词=“照护者;异基因造血干细胞移植;家里采访;用户体验;背景:造血干细胞移植(HCT)，也被称为血液和骨髓移植(BMT)，是一种高风险，但对许多癌症和非癌症疾病有潜在疗效的治疗方法。BMT路线图(Roadmap 1.0)是一个移动健康应用程序，是作为一个面向家庭护理人员的工具开发的，用于提供有关住院HCT患者健康状况的信息需求。目的:本研究探讨了接受HCT患者的家庭照顾者的观点和看法，以及他们对进一步技术发展和将BMT路线图扩展到门诊环境(称为路线图2.0)的投入。方法:对24名家庭照顾者进行半结构化定性访谈。问题来自现有文献，加上先前在医院进行的深入观察和访谈，以探讨研究目标。 Participants were recruited during routine outpatient clinic appointments of HCT patients, and all interviews were conducted in the participants' homes, the setting in which Roadmap 2.0 is intended for use. A thematic analysis was performed using a consistent set of codes derived from our prior research. New emerging codes were also included, and the coding structure was refined with iterative cycles of coding and data collection. Results: Four major themes emerged through our qualitative analysis: (1) stress related to balancing caregiving duties; (2) learning and adapting to new routines (resilience); (3) balancing one's own needs with the patient's needs (insight); and (4) benefits of caregiving. When caregivers were further probed about their views on engagement with positive activity interventions (ie, pleasant activities that promote positive emotions and well-being such as expressing gratitude or engaging in activities that promote positive thoughts, emotions, and behaviors), they preferred a ``menu'' of positive activities to help support caregiver health and well-being. Conclusions: This study involved family caregivers as participants in the development of new components for Roadmap 2.0. Our research provided a further understanding of the many priorities that hematopoietic stem cell transplant family caregivers face while maintaining balance in their lives. Their schedules can often be unpredictable, even more so once the patient is discharged from the hospital. Our findings suggest that expanding Roadmap 2.0 into the outpatient setting may provide critical caregiver support and that HCT caregivers are interested in and willing to engage in positive activities that may enhance well-being and attenuate the stress associated with caregiving. International Registered Report Identifier (IRRID): RR2-10.2196/resprot.4918 ", issn="2291-5222", doi="10.2196/15775", url="http://mhealth.www.mybigtv.com/2019/10/e15775/", url="https://doi.org/10.2196/15775", url="http://www.ncbi.nlm.nih.gov/pubmed/31651402" }