TY - JOUR AU - Jones, Steven AU - Atanasova, Dimitrinka AU - Dodd, Susanna AU - Flowers, Susan AU - Rosala-Hallas, Anna AU - Robinson, Heather AU - Semino, Elena AU - Lobban, Fiona PY - 2022 DA - 2022/10/20 TI -使用精神病和双相情感障碍患者亲属在线论坛:混合方法研究乔——JMIR表示“状态”健康SP - e35837六世- 9 - 10 KW -精神病KW -双相情感障碍KW -相对KW -护理员KW -心理健康KW -论坛KW -在线KW -数字医疗KW -亲戚教育和应对工具包KW -反应KW -审判AB -背景:亲属患有精神病或躁郁症经验高水平的窘迫,但通常不会提供他们需要的支持。在线同行论坛可能提供了一种解决方案，但关于谁使用它们、如何使用以及为什么使用它们的知识有限。这项研究报告了亲属教育和应对工具包(REACT)试验期间在线论坛的使用情况。目的:我们的目的是报告谁使用论坛和为什么;社会人口因素如何与参与相关;使用频率、使用类型和结果之间的关系;以及论坛是如何使用的。方法:统计分析主要社会人口学特征、论坛使用水平和痛苦之间的关系。通过主题分析和语义分析，我们了解了亲属加入论坛的原因以及他们发起的重点话题。 We also used the University Centre for Computer Corpus Research on Language Semantic Analysis System to compare how relatives and REACT supporters (moderators) used the forum. Results: A total of 348 participants with full forum use data from REACT were included in this study. The forum was accessed by 59.4% (207/348) of the relatives across the entire age range, with no significant associations between sociodemographic factors and forum participation, or between level or type of use and relatives’ distress levels. Relatives joined the forum primarily to find people in similar circumstances, express concerns, and talk about stressful events. Relatives were most concerned about recent events, negative emotions linked to caring, experiences of conflict or threat, and concerns about suicide. These posts underscored both the challenges the relatives were facing and the fact that they felt safe sharing them in this context. Conclusions: Although only a proportion of REACT participants engaged actively with its forum, they were widely distributed across age and other sociodemographic groupings. Relatives used the forum for information, support, and guidance and to offer detailed information about their experiences. The topics raised highlighted the burden carried by relatives and the potential value of easy-access, moderated, peer-supported forums in helping relatives to manage the challenges they faced. SN - 2368-7959 UR - https://mental.www.mybigtv.com/2022/10/e35837 UR - https://doi.org/10.2196/35837 UR - http://www.ncbi.nlm.nih.gov/pubmed/36264621 DO - 10.2196/35837 ID - info:doi/10.2196/35837 ER -