%0期刊文章%@ 2368-7959 %I JMIR出版物%V 9% 卡塔尔世界杯8强波胆分析N 10% P e35837 %T精神病和双相情感障碍患者亲属在线论坛的使用:混合方法研究Jones,Steven Atanasova,Dimitrinka Dodd,Susanna Flowers,Susan Rosala-Hallas,Anna Robinson,Heather Semino,Elena Lobban,Fiona + Spectrum精神健康研究中心，健康研究部，兰开斯特大学，健康创新1,Sir John Fisher Drive, la14 4AT，英国，44 1525 593382，s.jones7@lancaster.ac.uk %K精神病%K双相情感障碍%K相对%K护理人员%K心理健康%K论坛%K在线%K数字健康%K亲属教育和应对工具包%K反应%K试验%D 2022 %7 20.10.2022 %9原始论文%J JMIR Ment健康%G英语%X背景:精神病或双相情感障碍患者的亲属经历了高度的痛苦，但通常没有提供他们所需的支持。在线同行论坛可能提供了一种解决方案，但关于谁使用它们、如何使用以及为什么使用它们的知识有限。这项研究报告了亲属教育和应对工具包(REACT)试验期间在线论坛的使用情况。目的:我们的目的是报告谁使用论坛和为什么;社会人口因素如何与参与相关;使用频率、使用类型和结果之间的关系;以及论坛是如何使用的。方法:统计分析主要社会人口学特征、论坛使用水平和痛苦之间的关系。 We used thematic and semantic analyses to understand the reasons for relatives joining the forum and the key topics initiated by them. We also used the University Centre for Computer Corpus Research on Language Semantic Analysis System to compare how relatives and REACT supporters (moderators) used the forum. Results: A total of 348 participants with full forum use data from REACT were included in this study. The forum was accessed by 59.4% (207/348) of the relatives across the entire age range, with no significant associations between sociodemographic factors and forum participation, or between level or type of use and relatives’ distress levels. Relatives joined the forum primarily to find people in similar circumstances, express concerns, and talk about stressful events. Relatives were most concerned about recent events, negative emotions linked to caring, experiences of conflict or threat, and concerns about suicide. These posts underscored both the challenges the relatives were facing and the fact that they felt safe sharing them in this context. Conclusions: Although only a proportion of REACT participants engaged actively with its forum, they were widely distributed across age and other sociodemographic groupings. Relatives used the forum for information, support, and guidance and to offer detailed information about their experiences. The topics raised highlighted the burden carried by relatives and the potential value of easy-access, moderated, peer-supported forums in helping relatives to manage the challenges they faced. %M 36264621 %R 10.2196/35837 %U https://mental.www.mybigtv.com/2022/10/e35837 %U https://doi.org/10.2196/35837 %U http://www.ncbi.nlm.nih.gov/pubmed/36264621