杂志文章%@ 2292-9495 %I JMIR出版物%V 9% N 卡塔尔世界杯8强波胆分析3% P e37606 %为儿童癌症幸存者开发省级监测和支持系统:多阶段以用户为中心的设计研究%A Shuldiner,Jennifer %A Shah,Nida %A Reis,Catherine %A Chalmers,Ian %A Ivers,Noah %A Nathan,Paul %+卫生系统解决方案和虚拟护理研究所，女子学院医院，76 Grenville St，多伦多，ON, M5S 1B2，加拿大，1 (416)323 6400，jennifer.shuldiner@wchospital.ca %K设计%K癌症筛查%K儿童癌症幸存者%K晚期影响%K监测%K癌症%K癌症幸存者%K发病率%K死亡率%K癌症治疗%K乳房X线照片%K超声心动图%D 2022 %7 13.9.2022 %9原始论文%J JMIR Hum因素%G英文%X背景:儿童癌症幸存者由于其癌症治疗而面临终身发病(如新癌症或心脏衰竭)和过早死亡的风险。这些被称为后期效应。因此，它们需要终身的、针对风险的监测。然而，大多数儿童癌症的成年幸存者没有完成推荐的监测测试，如乳房x光检查或超声心动图。目的:通过与幸存者、家庭医生和卫生系统合作伙伴的合作，我们正在设计一个省级支持系统，以实施科学、行为科学和设计思维的原则为依据，为高优先级检测提供支持。方法:我们的多相过程结构如下。第1步包括一项定性研究，以探讨对获得监测测试至关重要的干预成分。第二步由儿童癌症幸存者、家庭医生和卫生系统利益相关者组成的研讨会组成，使用第一步的发现和“人物角色”(一系列虚构的但数据知情的角色)为不同的幸存者群体制定和定制干预措施。 Step 3 consisted of intervention prototype development, and Step 4 involved iterative user testing. Results: The qualitative study of 30 survivors and 7 family physicians found a high desire for information on surveillance for late effects. Respondents indicated that the intervention should help patients book appointments when they are due in addition to providing personalized information. Insights from the workshop included the importance of partnering with both family physicians and survivorship clinics and providing emotional support for survivors who may experience distress upon learning of their risk for late effects. In our user-testing process, prototypes went through iterations that incorporated feedback from users regarding acceptability, usability, and functionality. We sought to address the needs of survivors and physicians while balancing the capacity and infrastructure available for a lifelong intervention via our health system partners. Conclusions: In partnership with childhood cancer survivors, family physicians, and health system partners, we elucidated the barriers and enablers to accessing guideline-recommended surveillance tests and designed a multifaceted solution that will support survivors and their family physicians. The next step is to evaluate the intervention in a pragmatic randomized controlled trial. %M 36099013 %R 10.2196/37606 %U https://humanfactors.www.mybigtv.com/2022/3/e37606 %U https://doi.org/10.2196/37606 %U http://www.ncbi.nlm.nih.gov/pubmed/36099013