TY - JOUR AU - Wright, Hayley AU - Turner, Andrew AU - Ennis, Stuart AU - Percy, Carol AU - Loftus, Garry AU - Clyne, Wendy AU - Matouskova, Gabriela AU - Martin, Faith PY - 2022 DA - 2022/10/14 TI -数字同伴支持自我管理干预，由长时间COVID患者共同设计:混合方法概念验证研究乔- Res JMIR形式SP - e41410六世- 6 - 10 KW -长COVID KW -自我管理KW -同伴支持KW -数字干预千瓦目标设定KW -心理KW -物理KW -认知KW -干预KW -英国KW -英国KW -功效KW - COVID-19 AB -背景:大约有130万人在英国的毁灭性的心理、身体、和认知的后果长COVID (LC)。英国指南建议务实地管理LC症状，并对患者的生物-心理-社会需求(包括心理、情感和身体健康)提供整体支持。自我管理策略，如节奏、优先次序和目标设定，对于许多LC症状的自我管理是至关重要的。目的:本文描述了一种将同伴支持与积极心理学方法相结合的数字干预方法的联合开发和初步测试，用于自我管理与LC相关的身体、情感、心理和认知挑战。本研究的目的是(1)与LC患者共同设计一种干预方法;(2)检验干预和学习方法;(3)测量参与者的幸福感、自我效能感、疲劳感和孤独感的变化;(4)了解LC人员使用的自我管理目标和策略类型。方法:采用前-后、混合、实用、非受控设计。 Digital intervention content was codeveloped with a lived-experience group to meet the needs uncovered during the intervention development and logic mapping phase. The resulting 8-week digital intervention, Hope Programme for Long COVID, was attended by 47 participants, who completed pre- and postprogram measures of well-being, self-efficacy, fatigue, and loneliness. Goal-setting data were extracted from the digital platform at the end of the intervention. Results: The recruitment rate (n=47, 83.9%) and follow-up rate (n=28, 59.6%) were encouraging. Positive mental well-being (mean difference 6.5, P<.001) and self-efficacy (mean difference 1.1, P=.009) improved from baseline to postcourse. All goals set by participants mapped onto the 5 goal-oriented domains in the taxonomy of everyday self-management strategies (TEDSS). The most frequent type of goals was related to activity strategies, followed by health behavior and internal strategies. Conclusions: The bespoke self-management intervention, Hope Programme for Long COVID, was well attended, and follow-up was encouraging. The sample characteristics largely mirrored those of the wider UK population with LC. Although not powered to detect statistically significant changes, the preliminary data show improvements in self-efficacy and positive mental well-being. Our next trial (ISRCTN: 11868601) will use a nonrandomized waitlist control design to further examine intervention efficacy. SN - 2561-326X UR - https://formative.www.mybigtv.com/2022/10/e41410 UR - https://doi.org/10.2196/41410 UR - http://www.ncbi.nlm.nih.gov/pubmed/36166651 DO - 10.2196/41410 ID - info:doi/10.2196/41410 ER -