@文章{信息:doi/10.2196/33849，作者=“Al-Mondhiry, Jafar和D'Ambruoso, Sarah和Pietras, Christopher和Strouse, Thomas和Benzeevi, Dikla和Arevian, Armen C和Wells, Kenneth B”，标题=“使用社区合作参与性研究共同创建的移动应用程序用于缓和医疗:开发和可用性研究”，期刊=“JMIR Form Res”，年=“2022”，月=“Jun”，日=“23”，卷=“6”，数量=“6”，页=“e33849”，关键词=“手机;移动应用;移动健康;移动健康;电子健康;数字健康;姑息治疗;生活质量;生存;病人宣传; oncology; patient-reported outcomes; PRO; community-partnered participatory research; CPPR", abstract="Background: Open design formats for mobile apps help clinicians and stakeholders bring their needs to direct, co-creative solutions. Palliative care for patients with advanced cancers requires intensive monitoring and support and remains an area in high need for innovation. Objective: This study aims to use community-partnered participatory research to co-design and pretest a mobile app that focuses on palliative care priorities of clinicians and patients with advanced cancer. Methods: In-person and teleconference workshops were held with patient and family stakeholders, researchers, and clinicians in palliative care and oncology. Question prompts, written feedback, semistructured interviews, and facilitated group discussions identified the core palliative care needs. Using Chorus, a no-code app-building platform, a mobile app was co-designed with the stakeholders. A pretest with 11 patients was conducted, with semistructured interviews of clinician and patient users for feedback. Results: Key themes identified from the focus groups included needs for patient advocacy and encouragement, access to vetted information, patient-clinician communication support, and symptom management. The initial prototype, My Wellness App, contained a weekly wellness journal to track patient-reported symptoms, goals, and medication use; information on self-management of symptoms; community resources; and patient and caregiver testimonial videos. Initial pretesting identified value in app-based communication for clinicians, patients, and caregivers, with suggestions for improving user interface, feedback and presentation of symptom reports, and gamification and staff coordinators to support patient app engagement. Conclusions: The development of a mobile app using community-partnered participatory research is a low-technology and feasible intervention for palliative care. Iterative redesign and user interface expertise may improve implementation. ", issn="2561-326X", doi="10.2196/33849", url="https://formative.www.mybigtv.com/2022/6/e33849", url="https://doi.org/10.2196/33849", url="http://www.ncbi.nlm.nih.gov/pubmed/35737441" }