@文章{信息:doi/10.2196/40166，作者=“Morgan, Kerri A和Wong, Alex W K和Walker, Kim和Desai, Rachel Heeb和Knepper, Tina M和Newland, Pamela K”，标题=“手机短信干预对多发性硬化症，脊髓损伤和中风患者的疲劳管理:开发和可用性测试”，期刊=“JMIR Form Res”，年=“2022”，月=“12”，日=“21”，卷=“6”，数=“12”，页=“e40166”，关键词=“疲劳;残疾;移动健康;移动健康;患者激活”，摘要=“背景:疲劳显著影响残疾人的日常功能。疲劳管理是具有挑战性的，在常规的医生访问中提供的信息管理疲劳可能是压倒性的。解决疲劳的一种方法是增加知识、技能和自我管理的信心(即患者激活)。自我管理计划在针对残疾人疲劳方面显示出有希望的效果。然而，自我管理项目对残疾人的满意度很低，因此建议针对个性化需求进行个性化干预。短信越来越多地被用于在人的自然环境中实施改变健康行为的干预措施。 Little has been done to link mobile health approaches with patient activation and self-management to address fatigue in persons with disabilities. Objective: This study aimed to develop and test a mobile phone--based fatigue self-management SMS text messaging intervention targeting patient activation in 3 groups of persons with disabilities: persons with multiple sclerosis, persons who had a stroke, and persons with a spinal cord injury. Methods: We used evidence-based resources and input from a consumer advisory board (CAB; composed of 2 participants from each of the 3 disability groups) and a neurologist to develop the intervention. The study was conducted using a 4-step process: development of the initial SMS text messaging library and categorization of the content into 9 content areas, review and modification of the SMS text messages by the neurologist and CAB, integration of the content library into a digital platform, and utility testing by CAB members. Results: A total of 6 CAB participants rated SMS text messages covering 9 domain areas of fatigue self-management with good clarity (mean ratings=3.5-5.0 out of 5) and relevance (mean ratings=3.2-5.0 out of 5). Overall, SMS text messaging content was reported by CAB participants as helpful, clear, and well suited for a mobile health intervention. The CAB reached consensus on the time of day that SMS text messages should be sent (morning) and their frequency (once per day). This feedback led the research team to narrow down the program to deliver 48 SMS text messages, 1 per day, Monday through Thursday only, a total of 4 SMS text messages per week, over a 12-week period. The final set of SMS text messages was programmed into a digital platform with a predefined delivery schedule. The usability of the intervention was high, with 55 (83{\%}) out of 66 responses endorsing the highest rating. Conclusions: This study demonstrates a step-by-step process for developing a fatigue self-management SMS text messaging intervention for persons with disabilities. For this population, whose access to health services is often limited, this intervention provides an alternative delivery model to increase access to fatigue information and deliver content that aligns with the person's needs. ", issn="2561-326X", doi="10.2196/40166", url="https://formative.www.mybigtv.com/2022/12/e40166", url="https://doi.org/10.2196/40166", url="http://www.ncbi.nlm.nih.gov/pubmed/36542466" }