期刊文章I JMIR Publications为患有1型糖尿病的幼童的卡塔尔世界杯8强波胆分析父母提供基于网络的应对干预:以用户为中心的设计%A Wysocki,Tim %A Pierce,Jessica %A Caldwell,Cindy %A Aroian,Karen %A Miller,Louis %A Farless,Rebecca %A Hafezzadeh,Ivy %A mccaninch,Terri %A Lee,Joyce M %+ Nemours儿童专业护理中心，医疗保健提供科学中心，Nemours儿童健康系统，807儿童之路，杰克逊维尔，32207，美国佛罗里达州，1 904 697 3483，tim.wysocki@nemours.org %K应对%K手机%K育儿%K社交媒体%K 1型糖尿病%D 2018 %7 17.12.2018 %9原论文%J JMIR糖尿病%G英文%X背景:管理6岁以下儿童的1型糖尿病(T1D)对父母和照顾者来说是非常具有挑战性的。患T1D (YC-T1D)的幼童的代谢和社会心理结果与父母应对这些挑战的能力密切相关。针对这些问题测试干预措施的研究很少，为卫生保健提供者提供针对这些父母的可行和有效的应对策略的资源也很少。以用户为中心的设计(UCD)是一种持续可访问的基于web的资源，可以通过为YC-T1D的父母提供信息、解决方案和情感支持，帮助他们更有效地应对他们所面临的复杂挑战。目的:本文的目的是:(1)描述UCD原则在开发基于网络的应对干预中的应用，该干预由患有T1D的非常小的儿童(小于6岁)的父母设计并为其设计;(2)说明在设计和创建该资源时，使用众包方法获取父母、卫生保健提供者和Web开发专业人员的观点;(3)总结了一项正在进行的随机对照试验(RCT)的设计，该试验评估了父母获取这一资源对相关儿童和父母结果的影响。方法:本文阐述了UCD原则的应用，创建了YC-T1D家长为其设计的基于web的应对资源。 A Web-based Parent Crowd, a Health Care Provider Crowd, and a Focus Group of minority parents provided input throughout the design process. A formal usability testing session and design webinars yielded additional stakeholder input to further refine the end product. Results: This paper describes the completed website and the ongoing RCT to evaluate the effects of using this Web-based resource on pertinent parent and child outcomes. Conclusions: UCD principles and the targeted application of crowdsourcing methods provided the foundation for the development, construction, and evaluation of a continuously accessible, archived, user-responsive coping resource designed by and for parents of YC-T1D. The process described here could be a template for the development of similar resources for other special populations that are enduring specific medical or psychosocial distress. The ongoing RCT is the final step in the UCD process and is designed to validate its merits. %M 30559089 %R 10.2196/diabetes.9926 %U http://diabetes.www.mybigtv.com/2018/4/e16/ %U https://doi.org/10.2196/diabetes.9926 %U http://www.ncbi.nlm.nih.gov/pubmed/30559089