TY -非盟的镀金,安东尼贾斯汀AU - Ho Nhung盟——教皇,艾琳娜AU -席博德,凯瑟琳PY - 2022 DA - 2022/10/6 TI -斑秃的疾病负担:加拿大在线调查的病人和照顾者乔- JMIR北京医学SP - e39167六世- 5 - 4 KW -斑秃千瓦的生活质量KW -疾病负担KW -脱发KW - QoL KW -负担KW -皮肤科AB -背景:斑秃(AA)与负面影响生活质量(QoL)。加拿大患者及其护理人员缺乏这方面影响的数据。目的:本研究旨在了解加拿大AA患者及其照护者的负担。方法:我们对5-11岁、12-17岁和≥18岁的AA患者以及<18岁AA患儿的照顾者进行了4项在线调查。这些信息通过加拿大斑秃基金会(canaf)网站和加拿大各地的皮肤科医生传播。结果:共有115名成年患者(n=100, 87%，女性)，14名儿科患者(n=13, 92.9%，女性)和15名护理人员在线完成了调查。大多数(n= 123,95%)患者对自己的外表感到不舒服或难为情。11名(78.6%)儿童患者和84名(73%)成人患者常用帽子、围巾和假发来伪装脱发。8名(57.1%)儿童患者和75名(65.2%)成人患者报告回避社交场合。8例(57.1%)儿童患者和75例(65.2%)成人患者持续担心失去已实现的毛发生长。 On a scale of 1-5, the mean score of caregivers’ own feelings of sadness or depression about their child’s AA was 4.0 (SD 0.9) and of their feelings of guilt or helplessness was 4.2 (SD 1.2). The impact on the QoL was moderate for both children and adults. Based on the Adjustment Disorder New Module-20 (ADNM-20), 71 (61.7%) of 115 patients were at high risk of an adjustment disorder. Abnormal anxiety scores were recorded in 40 (34.8%) patients compared to abnormal depression scores in 20 (17.4%) patients. Conclusions: This study confirmed a significant burden of AA on Canadian patients’ and caregivers’ QoL. SN - 2562-0959 UR - https://derma.www.mybigtv.com/2022/4/e39167 UR - https://doi.org/10.2196/39167 DO - 10.2196/39167 ID - info:doi/10.2196/39167 ER -