TY - JOUR AU - Köhle, Nadine AU - Drossaert, Constance HC AU - Oosterik, Suzan AU - Schreurs, Karlein MG AU - Hagedoorn, Mariët AU - van Uden-Kraan, Cornelia F AU - Verdonck-de Leeuw, Irma M AU - Bohlmeijer, Ernst T PY - 2015 DA - 2015/12/29 TI -基于网络的心理干预对癌症患者伴侣的需求和偏好:一项质性研究JO - JMIR癌症SP - e13 VL - 1 IS - 2kw -癌症KW -肿瘤KW -伴侣KW -需求KW -网络干预KW -干预AB -背景:基于证据的、容易获得的、对癌症患者伴侣的支持性干预是有限的，尽管他们经常遭受情绪、社会、身体和关系功能下降的事实。为了开发一种新的干预措施来满足他们的需求，咨询潜在用户是很重要的。目的:研究伴侣对网络心理干预的兴趣，并确定他们对这种干预的需求和愿望。方法:对年龄、性别、教育程度、职业、疾病类型和分期不同的16名癌症患者伴侣进行半结构式访谈。合作伙伴被问及(1)他们是否会使用基于网络的心理干预，以及需要满足哪些前提条件(最长时间、结构、单独参与或与伴侣一起参与);(2)干预应包含哪些功能(信息、同伴支持、在线心理咨询);以及(3)哪些话题(如照顾自己)应该被解决。数据由2名编码器独立编码。结果:对基于网络的干预的需求各不相同。 Arguments for being interested in a Web-based intervention included the need for acknowledgement; the need for someone they could talk to; and the need for information, tips, and support. Based on their experiences as a partner of a cancer patient, participants would prefer an intervention that is not too time-consuming (about 1-2 hours a week) and which is based on a “step-by-step” approach, meaning that the content of the intervention should match the stage of their partner’s disease. Also, they would prefer a positive approach, which means that the intervention should be a source of hope and energy. Most participants stated that they would prefer to participate without their ill spouse, because they do not want to burden their partners with their own problems. An intervention should contain information and optional peer support. Participants’ opinions about online psychological counseling in the intervention were divided. Arguments for online psychological counseling were that a professional could check on them and they were able to ask questions. Arguments against online counseling were that partners were not in need for guidance or they had enough support from usual care. Topics with the highest priority were “coping with feelings and emotions,” “should I or shouldn’t I spare my partner?,” “communicating with each other,” “asking for help and refusing help,” and “moving on with life after cancer treatment.” Furthermore, participants suggested additional topics of “dare to enjoy” and “acceptance of the patient’s disease.” Conclusions: A Web-based intervention can be a valuable addition to existing support initiatives for partners of cancer patients. This study provides important information about the content and form of such an intervention. Flexibility and a positive approach seem to be the most important features. SN - 2369-1999 UR - http://cancer.www.mybigtv.com/2015/2/e13/ UR - https://doi.org/10.2196/cancer.4631 UR - http://www.ncbi.nlm.nih.gov/pubmed/28410157 DO - 10.2196/cancer.4631 ID - info:doi/10.2196/cancer.4631 ER -