杂志文章@ 2369-1999 JMIR出版公司关于基于网络的心理干预卡塔尔世界杯8强波胆分析，癌症患者伴侣的需求和偏好:定性研究%A Köhle,Nadine %A Drossaert,Constance HC %A Oosterik,Suzan %A Schreurs,Karlein MG %A Hagedoorn,Mariët %A van Uden-Kraan,Cornelia F %A Verdonck-de Leeuw,Irma M %A Bohlmeijer,Ernst T %+特温特大学心理系，健康与技术，邮箱217,Enschede, 7500 AE，荷兰，31 053 489 2092，n.kohle@utwente.nl %K癌症%K肿瘤%K伴侣%K需要%K网络干预%K干预%D 2015 %7 29.12.2015 %9原论文%J JMIR癌症%G英文%X背景:对癌症患者伴侣的基于证据的、容易获得的支持性干预是有限的，尽管事实上他们经常遭受情感、社会、身体和关系功能下降的痛苦。为了开发出符合他们需求的新干预措施，咨询潜在用户是很重要的。目的:考察伴侣对基于网络的心理干预的兴趣，并确定他们对这种干预的需求和愿望。方法:半结构化访谈16名癌症患者的伴侣，他们的年龄、性别、教育程度、职业、类型和疾病阶段各不相同。调查对象被问及(1)他们是否会使用基于网络的心理干预，该干预应满足哪些前提条件(最长时间、结构、单独参与或与伴侣一起参与);(2)干预应包含哪些功能(信息、同伴支持、在线心理咨询);以及(3)哪些话题(例如，照顾自己)应该被讨论。数据由2名编码人员独立编码。 Results: The need for a Web-based intervention varied. Arguments for being interested in a Web-based intervention included the need for acknowledgement; the need for someone they could talk to; and the need for information, tips, and support. Based on their experiences as a partner of a cancer patient, participants would prefer an intervention that is not too time-consuming (about 1-2 hours a week) and which is based on a “step-by-step” approach, meaning that the content of the intervention should match the stage of their partner’s disease. Also, they would prefer a positive approach, which means that the intervention should be a source of hope and energy. Most participants stated that they would prefer to participate without their ill spouse, because they do not want to burden their partners with their own problems. An intervention should contain information and optional peer support. Participants’ opinions about online psychological counseling in the intervention were divided. Arguments for online psychological counseling were that a professional could check on them and they were able to ask questions. Arguments against online counseling were that partners were not in need for guidance or they had enough support from usual care. Topics with the highest priority were “coping with feelings and emotions,” “should I or shouldn’t I spare my partner?,” “communicating with each other,” “asking for help and refusing help,” and “moving on with life after cancer treatment.” Furthermore, participants suggested additional topics of “dare to enjoy” and “acceptance of the patient’s disease.” Conclusions: A Web-based intervention can be a valuable addition to existing support initiatives for partners of cancer patients. This study provides important information about the content and form of such an intervention. Flexibility and a positive approach seem to be the most important features. %M 28410157 %R 10.2196/cancer.4631 %U http://cancer.www.mybigtv.com/2015/2/e13/ %U https://doi.org/10.2196/cancer.4631 %U http://www.ncbi.nlm.nih.gov/pubmed/28410157