@文章{信息:doi/10.2196/32153,作者=“南顿,维罗妮卡和阿普尔顿,丽卡和艾哈迈德,尼萨尔和勒夫,Joelle和罗斯科,朱莉娅和Muthuswamy, Radha和Patel, Prashant和Dale, Jeremy和Ahmedzai, Sam H”,标题=“基于web的前列腺癌——特定的整体需求评估(hat - p):从概念到临床实践的多方法研究”,期刊=“JMIR癌症”,年=“2022”,月=“10月”,日=“19”,卷=“8”,数=“4”,页=“e32153”,关键词=“整体需求评估;前列腺癌;生存;癌症随访;合作生产;网络通信;背景:前列腺癌患者会经历疾病及其治疗的直接和长期后果。它们既需要对复发或进展进行长期监测,也需要进行随访,以确定和帮助管理心理和身体方面的影响。整体需求评估旨在确保以患者为中心的持续癌症护理。然而,基于纸张的通用工具在癌症服务中的应用有限,几乎没有证据表明它们的影响。 With the expansion of remote methods of care delivery and to enhance the value of generic tools, we developed a web-based Composite Holistic Needs Assessment Adaptive Tool-Prostate (CHAT-P) specifically for prostate cancer. Objective: This paper described the context, conceptual underpinning, and approach to design that informed the development of CHAT-P, starting from the initial concept to readiness for deployment. Through this narrative, we sought to contribute to the expanding body of knowledge regarding the coproduction process of innovative digital systems with potential for enhanced cancer care delivery. Methods: The development of CHAT-P was guided by the principles of coproduction. Men with prostate cancer and health care professionals contributed to each stage of the process. Testing was conducted iteratively over a 5-year period. An initial rapid review of patient-reported outcome measures identified candidate items for inclusion. These items were categorized and allocated to overarching domains. After the first round of user testing, further items were added, improvements were made to the adaptive branching system, and response categories were refined. A functioning version of CHAT-P was tested with 16 patients recruited from 3 outpatient clinics, with interviewers adopting the think-aloud technique. Interview transcripts were analyzed using a framework approach. Interviews and informal discussions with health care professionals informed the development of a linked care plan and clinician-facing platform, which were incorporated into a separate feasibility study of digitally enhanced integrated cancer care. Results: The findings from the interview study demonstrated the usability, acceptability, and potential value of CHAT-P. Men recognized the benefits of a personalized approach and the importance of a holistic understanding of their needs. Preparation for the consultation by the completion of CHAT-P was also recognized as empowering. The possible limitations identified were related to the importance of care teams responding to the issues selected in the assessment. The subsequent feasibility study highlighted the need for attention to men's psychological concerns and demonstrated the ability of CHAT-P to capture red flag symptoms requiring urgent investigation. Conclusions: CHAT-P offers an innovative means by which men can communicate their concerns to their health care teams before a physical or remote consultation. There is now a need for a full evaluation of the implementation process and outcomes where CHAT-P is introduced into the clinical pathway. There is also scope for adapting the CHAT-P model to other cancers. ", issn="2369-1999", doi="10.2196/32153", url="https://cancer.www.mybigtv.com/2022/4/e32153", url="https://doi.org/10.2196/32153", url="http://www.ncbi.nlm.nih.gov/pubmed/36260380" }
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