@文章{信息:doi/10.2196/33110,作者=“Thaker, Khushboo和Chi, Yu和Birkhoff, Susan和He, Daqing和Donovan, Heidi和Rosenblum, Leah和Brusilovsky, Peter和Hui, Vivian和Lee, Young Ji”,标题=“探索资源共享行为寻找相关健康资源:在线卵巢癌社区分析”,期刊=“JMIR Cancer”,年=“2022”,月=“4”,日=“12”,卷=“8”,数=“2”,页=“e33110”,关键词=“在线健康社区”;资源共享;链接分享;局部相关性;信息寻求;卵巢癌;背景:在线健康社区(OHCs)为卵巢癌患者和幸存者及其护理人员提供传统支持渠道(如卫生保健提供者和临床医生)之外的帮助。OvCa ohc促进具有相似经验的用户之间的联系和信息交流。用户之间经常交换信息,导致资源以网络链接的形式共享。虽然OHCs是健康管理的重要平台,但在共享资源的质量和相关性方面存在关切。 Previous studies have examined different aspects of resource-sharing behaviors, such as the purpose of sharing, the type of shared resources, and peer user reactions to shared resources in OHCs to evaluate resource exchange scenarios. However, there is a paucity of research examining whether resource-sharing behaviors can ultimately determine the relevance of shared resources. Objective: This study aimed to examine the association between OHC resource-sharing behaviors and the relevance of shared resources. We analyzed three aspects of resource-sharing behaviors: types of shared resources, purposes of sharing resources, and OHC users' reactions to shared resources. Methods: Using a retrospective design, data were extracted from the National Ovarian Cancer Coalition discussion forum. The relevance of a resource was classified into three levels: relevant, partially relevant, and not relevant. Resource-sharing behaviors were identified through manual content analysis. A significance test was performed to determine the association between resource relevance and resource-sharing behaviors. Results: Approximately 48.3{\%} (85/176) of the shared resources were identified as relevant, 29.5{\%} (52/176) as partially relevant, and 22.2{\%} (39/176) as irrelevant. The study established a significant association between the types of shared resources ($\chi$218=33.2; P<.001) and resource relevance (through chi-square tests of independence). Among the types of shared resources, health consumer materials such as health news (P<.001) and health organizations (P=.02) exhibited significantly more relevant resources. Patient educational materials (P<.001) and patient-generated resources (P=.01) were more significantly associated with partially relevant and irrelevant resources, respectively. Expert health materials, including academic literature, were only shared a few times but had significantly (P<.001) more relevant resources. A significant association ($\chi$210=22.9; P<.001) was also established between the purpose of resource sharing and overall resource relevance. Resources shared with the purpose of providing additional readings (P=.01) and pointing to resources (P=.03) had significantly more relevant resources, whereas subjects for discussion and staying connected did not include any relevant shared resources. Conclusions: The associations found between resource-sharing behaviors and the relevance of these resources can help in collecting relevant resources, along with the corresponding information needs from OvCa OHCs, on a large scale through automation. The results from this study can be leveraged to prioritize the resources required by survivors of OvCa and their caregivers, as well as to automate the search for relevant shared resources in OvCa OHCs. ", issn="2369-1999", doi="10.2196/33110", url="https://cancer.www.mybigtv.com/2022/2/e33110", url="https://doi.org/10.2196/33110", url="http://www.ncbi.nlm.nih.gov/pubmed/35258465" }
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