@Article{info:doi/10.2196/26950,作者=“Trojan, Andreas and B{\“a”ttig, Basil and Mannhart, Meinrad and Seifert, Burkhardt and Brauchbar, Mathis N and Egbring, Marco”,标题=“乳腺癌患者共享报告中患者电子报告结果协同评审的效果:描述性比较研究”,期刊=“JMIR Cancer”,年=“2021”,月=“Mar”,日=“17”,卷=“7”,数=“1”,页=“e26950”,关键词=“Cancer;Consilium护理;智能手机应用;电子健康;电子患者报告结果;不良事件通用术语标准”,摘要=“背景:数字化监测治疗相关症状和自我报告的患者结局对癌症患者的护理质量很重要。随着移动设备的普及,电子患者报告结果(ePROs)的收集正在获得动力。到目前为止,还缺乏有助于epro数量和质量的模式的数据。目的:我们研究的目的是比较随后使用的两个版本的移动应用程序对PROs的电子监测的使用情况,并检验我们的假设,即在医患合作中对症状的共同回顾对数据条目的数量有影响。方法:Consilium Care应用程序让癌症患者在门诊环境中标准化幸福感和治疗相关症状的报告。 For descriptive comparison of the utilization of two slightly different app versions, data were obtained from an early breast cancer trial (version 1 of the app, n=86) and an ongoing study including patients with advanced disease (version 2 of the app, n=106). In both app versions, patients and doctors were allowed to share the information from data entries during consultations. Version 2 of the app, however, randomly selected symptoms that required a detailed and shared regular patient-doctor review in order to focus on the collection and appropriate interpretation regarding awareness and guidance for severity grading. The numbers and types of symptom entries, satisfaction with both app versions, and patients' perceived effects during consultations were included for analysis. Results: Symptom severity grading was performed according to the Common Terminology Criteria for Adverse Events (CTCAE) using a horizontal slider and was indicated in descriptive terminology in both apps, while a graphical display facilitated the illustration of symptom history charts. In total, 192 patients electronically reported 11,437 data entries on well-being and 33,380 data entries on individual symptoms. Overall, 628 (of 872 intended) requested patient-doctor symptom reviews were performed in version 2 of the app. Both the amount of data entries per patient and day for well-being (version 1 vs version 2: 0.3 vs 1.0; P<.001) and symptoms (version 1 vs version 2: 1.3 vs 1.9; P=.04) appeared significantly increased in version 2 of the app. Overall satisfaction with both app versions was high, although version 2 of the app was perceived to be more helpful in general. Conclusions: Version 2 of the app showed much better results than version 1 of the app. A request for collaborative patient-doctor symptom review is likely to affect the number of digital symptom data entries. This app shows high potential to improve the patient-doctor experience. Trial Registration: ClinicalTrials.gov NCT02004496; https://clinicaltrials.gov/ct2/show/NCT02004496 and ClinicalTrials.gov NCT03578731; https://clinicaltrials.gov/ct2/show/NCT03578731 ", issn="2369-1999", doi="10.2196/26950", url="https://cancer.www.mybigtv.com/2021/1/e26950", url="https://doi.org/10.2196/26950", url="http://www.ncbi.nlm.nih.gov/pubmed/33729162" }
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