@Article{信息:doi 10.2196 /癌症。7952，作者=“Kalf, Rachel RJ和Makady, Amr和ten Ham, Renske MT和Meijboom, Kim和Goettsch, Wim G”，标题=“社交媒体在相对有效性评估中的使用:以肿瘤学为例的探索性回顾”，期刊=“JMIR癌症”，年=“2018”，月=“Jun”，日=“08”，卷=“4”，数=“1”，页=“e11”，关键词=“社交媒体;相对有效性;现实世界的数据;背景:卫生技术评估的一个要素是评估药物的临床有效性，通常称为相对有效性评估。在进入市场后，很少有现实世界的证据可直接获得，因此采用随机对照试验来获得相对有效性评估的信息。然而，人们对使用真实世界的数据进行相对有效性评估越来越感兴趣。社交媒体可以提供真实世界的数据来源。目的:我们评估了社交媒体生成的健康数据在多大程度上为相对有效性评估提供了见解。方法:遵循系统评价和荟萃分析首选报告项目指南进行探索性文献回顾，以确定使用社交媒体收集肿瘤健康数据的例子。 Scientific and grey literature published between January 2010 and June 2016 was identified by four reviewers, who independently screened studies for eligibility and extracted data. A descriptive qualitative analysis was performed. Results: Of 1032 articles identified, eight were included: four articles identified adverse events in response to cancer treatment, three articles disseminated quality of life surveys, and one study assessed the occurrence of disease-specific symptoms. Several strengths of social media-generated health data were highlighted in the articles, such as efficient collection of patient experiences and recruiting patients with rare diseases. Conversely, limitations included validation of authenticity and presence of information and selection bias. Conclusions: Social media may provide a potential source of real-world data for relative effectiveness assessment, particularly on aspects such as adverse events, symptom occurrence, quality of life, and adherence behavior. This potential has not yet been fully realized and the degree of usefulness for relative effectiveness assessment should be further explored. ", issn="2369-1999", doi="10.2196/cancer.7952", url="http://cancer.www.mybigtv.com/2018/1/e11/", url="https://doi.org/10.2196/cancer.7952", url="http://www.ncbi.nlm.nih.gov/pubmed/29884607" }