TY -的盟Gerritzen以斯帖维拉AU -李,阿比盖尔丽贝卡AU -麦克德莫特,Orii AU -库尔森,尼尔非盟- Orrell表示,马丁PY - 2022 DA - 2022/7/27 TI -在线同伴支持帕金森病的人:叙事合成系统回顾乔- JMIR老化SP - e35425六世- 5 - 3 KW -帕金森病KW -基于web的卫生界KW -在线同伴支持KW -叙事合成千瓦系统回顾AB -背景:帕金森病(PD)严重影响患者及其家人的生活。除了身体上的症状，患有帕金森症的人也有情感上的影响。这可能导致退出社会角色，增加社会孤立和孤独的风险。同伴支持是一种保持社会联系、分享经验和学习新的应对技巧的方式。同伴支持既可以当面提供，也可以在网上提供。在线同伴支持的一些优点是，它克服了地理障碍，提供了一种匿名形式;此外，在需要时可以随时提供支持。然而，帕金森病的社会心理影响仍未得到充分研究，目前还没有系统地综合帕金森病患者的在线同伴支持。目的:本综述旨在探讨在线同伴支持的好处和挑战，并确定在线同伴支持对帕金森病患者的成功因素。 Methods: The method selected for this systematic review is narrative synthesis. A total of 6 databases were systematically searched in April 2020 for articles published between 1989 and 2020. The quality of the included studies was assessed using the Critical Appraisal Skills Programme qualitative research checklist and the Downs and Black quality checklist. Results: A total of 10,987 unique articles were identified through a systematic database search. Of these 10,987 articles, 8 (0.07%) were included in this review. Of the 8 studies, 5 (63%) were of good or high quality, 2 (25%) were of medium or fair quality, and 1 (13%) study was of poor quality. Web-based platforms included discussion forums, a web-based virtual world, and Facebook groups. Most papers reported on text-based communication. The included studies reported on sharing social support and personal experiences. Successful elements included increasing similarity between members and offering the opportunity to directly ask questions to a physician. Challenges included members leaving without a warning and PD symptoms hindering the use of technology. Conclusions: Peer support can improve social support and help people with PD in living meaningful and satisfying lives. Peer support is unique and cannot be replaced by family members, friends, or health care professionals. Online peer support can be a solution for those who do not have access to an in-person support group or whose PD symptoms restrict them from travelling. However, research on the personal experiences of those who engage in online peer support and potential barriers in accessing it remains limited. Future research could use qualitative methods to explore these fields further. SN - 2561-7605 UR - https://aging.www.mybigtv.com/2022/3/e35425 UR - https://doi.org/10.2196/35425 UR - http://www.ncbi.nlm.nih.gov/pubmed/35896025 DO - 10.2196/35425 ID - info:doi/10.2196/35425 ER -