慢性阻塞性肺疾病患者使用电子健康工具进行自我管理的经历和影响因素:卡塔尔世界杯8强波胆分析定性研究%A Marklund,Sarah %A Tistad,Malin %A Lundell,Sara %A Östrand,Lina %A Sörlin,Ann %A Boström,Carina %A Wadell,Karin %A Nyberg,Andre %+尤梅夫大学社区医学与康复学系物理治疗科,尤梅夫大学生物学系,瑞典,90187,46 0907869835,sarah.marklund@umu.se %K COPD %K定性内容分析%K eHealth %K自我管理%K初级保健%K慢性疾病%D 2021 %7 30.4.2021 %9背景:自我管理策略在慢性阻塞性肺疾病(COPD)治疗指南中被认为是高度优先的。然而,个体和结构性障碍导致数量惊人的慢性阻塞性肺病患者无法获得此类策略的支持,迫切需要新的方法来规避这些障碍。提供保健服务(如支持自我管理战略)的一种有希望的方式是使用电子保健工具。然而,人们对慢性阻塞性肺病患者长期使用电子卫生工具的情况以及影响其使用的因素缺乏了解。目的:本研究旨在探索和描述慢性阻塞性肺病患者在一段时间内使用电子健康工具的经历以及可能影响使用的因素。方法:eHealth工具包括COPD患者循证自我管理治疗的信息,包括文本、图片、视频以及具有自动反馈的步数登记功能等交互式组件。除了后者,新内容的自动通知和计步器被用作增加使用率的触发器。在使用该工具3个月后,对16名COPD患者(12名女性)进行了单独访谈。 At 12 months’ access to the tool, 7 (5 women) of the previous 16 individuals accepted a second individual interview. Data were analyzed using qualitative content analysis. User frequency was considered in the analysis, and participants were divided into users and nonusers/seldom users depending on the number of logins and minutes of usage per month. Results: Three main categories, namely, ambiguous impact, basic conditions for usage, and approaching capability emerged from the analysis, which, together with their subcategories, reflect the participants’ experiences of using the eHealth tool. Nonusers/seldom users (median 1.5 logins and 1.78 minutes spent on the site per month) reported low motivation, a higher need for technical support, a negative view about the disease and self-management, and had problematic health literacy as measured by the Communicative and Critical Health Literacy Scale (median [range] 154 [5-2102]). Users (median 10 logins and 43 minutes per month) felt comfortable with information technology (IT) tools, had a positive view on triggers, and had sufficient health literacy (median [range] 5 [5-1400]). Benefits including behavior changes were mainly expressed after 12 months had passed and mainly among users. Conclusions: Findings of this study indicate that the level of motivation, comfortability with IT tools, and the level of health literacy seem to affect usage of an eHealth tool over time. Besides, regarding behavioral changes, gaining benefits from the eHealth tool seems reserved for the users and specifically after 12 months, thus suggesting that eHealth tools can be suitable media for supporting COPD-specific self-management skills, although not for everyone or at all times. These novel findings are of importance when designing new eHealth tools as well as when deciding on whether or not an eHealth tool might be appropriate to use if the goal is to support self-management among people with COPD. Trial Registration: ClinicalTrials.gov NCT02696187; https://clinicaltrials.gov/ct2/show/NCT02696187 International Registered Report Identifier (IRRID): RR2-10.1136/bmjopen-2017-016851 %M 33929327 %R 10.2196/25672 %U //www.mybigtv.com/2021/4/e25672 %U https://doi.org/10.2196/25672 %U http://www.ncbi.nlm.nih.gov/pubmed/33929327
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