@Article{信息:doi 10.2196 / / jmir。7639，作者="Giesler, J{\"u}rgen M和Keller, Bettina和Repke, Tim和Leonhart, Rainer和Weis, Joachim和Muckelbauer, Rebecca和Rieckmann, Nina和M{\"u} ler- nordhorn, Jacqueline和lucus - hoene, Gabriele和Holmberg, Christine"，标题="一个呈现患者经历的网站对结直肠癌患者自我效能和患者能力的影响:基于网络的随机对照试验”，期刊=“J Med Internet Res”，年=“2017”，月=“10”，日=“13”，卷=“19”，数=“10”，页数=“e334”，关键词=“自我效能感”;结直肠癌;病人的能力;叙述信息;基于网络的经验信息”，摘要=“背景:患者经常寻求其他患者的疾病经验。通过博客或患者发起的在线讨论组，互联网提供了广泛的机会来分享和了解其他人的健康和疾病经历。还存在一系列医疗信息设备，其中包括体验式患者信息。然而，人们对这种经验信息的使用存在严重担忧，因为其他人的叙述可能是强大而普遍的工具，可能阻碍知情决策的制定。 The international research network DIPEx (Database of Individual Patients' Experiences) aims to provide scientifically based online information on people's experiences with health and illness to fulfill patients' needs for experiential information, while ensuring that the presented information includes a wide variety of possible experiences. Objective: The aim is to evaluate the colorectal cancer module of the German DIPEx website krankheitserfahrungen.de with regard to self-efficacy for coping with cancer and patient competence. Methods: In 2015, a Web-based randomized controlled trial was conducted using a two-group between-subjects design and repeated measures. The study sample consisted of individuals who had been diagnosed with colorectal cancer within the past 3 years or who had metastasis or recurrent disease. Outcome measures included self-efficacy for coping with cancer and patient competence. Participants were randomly assigned to either an intervention group that had immediate access to the colorectal cancer module for 2 weeks or to a waiting list control group. Outcome criteria were measured at baseline before randomization and at 2 weeks and 6 weeks Results: The study randomized 212 persons. On average, participants were 54 (SD 11.1) years old, 58.8{\%} (124/211) were female, and 73.6{\%} (156/212) had read or heard stories of other patients online before entering the study, thus excluding any influence of the colorectal cancer module on krankheitserfahrungen.de. No intervention effects were found at 2 and 6 weeks after baseline. Conclusions: The results of this study do not support the hypothesis that the website studied may increase self-efficacy for coping with cancer or patient competencies such as self-regulation or managing emotional distress. Possible explanations may involve characteristics of the website itself, its use by participants, or methodological reasons. Future studies aimed at evaluating potential effects of websites providing patient experiences on the basis of methodological principles such as those of DIPEx might profit from extending the range of outcome measures, from including additional measures of website usage behavior and users' motivation, and from expanding concepts, such as patient competency to include items that more directly reflect patients' perceived effects of using such a website. Trial Registration: Clinicaltrials.gov NCT02157454; https://clinicaltrials.gov/ct2/show/NCT02157454 (Archived by WebCite at http://www.webcitation.org/6syrvwXxi) ", issn="1438-8871", doi="10.2196/jmir.7639", url="//www.mybigtv.com/2017/10/e334/", url="https://doi.org/10.2196/jmir.7639", url="http://www.ncbi.nlm.nih.gov/pubmed/29030329" }