@Article{info:doi/10.2196/18972,作者=“Maier, Andr{\'e}和Eicher, Cornelia和Kiselev, Joern和Klebbe, Robert和Greu{\ 'e} l, Marius和Kettemann, Dagmar和Gaudlitz, Marcel和Walter, Bertram和Oleimeulen, Ursula和M{\ ' u}nch, Christoph和Meyer, Thomas和Spittel, Susanne”,标题=“肌萎缩性侧索硬化症患者对增强机器人辅助系统的接受-相关运动障碍:“观察在线研究”,期刊=“JMIR Rehabil Assist Technol”,年=“2021”,月=“12”,日=“6”,卷=“8”,号=“4”,页=“e18972”,关键词=“肌萎缩性侧索硬化症;辅助机器人;技术承诺;摘要:背景:肌萎缩性侧索硬化症(ALS)是一种致命的神经退行性疾病,其特征是四肢进行性麻痹和手部功能丧失。由于该病带来严重的功能损害,ALS需要提供全面的护理和一套复杂的辅助技术设备。为了减轻护理人员的负担,提高ALS患者的自主性,机器人辅助系统正在开发中。这项试验旨在评估ALS患者对技术的接受程度,以及对机械臂辅助的接受程度,从而为开发一种半自动机械臂奠定基础,这种机械臂可以通过多模式用户界面由人类控制,并允许用户处理物体和照顾自己的身体。目的:本研究的目的是从肢体受限的ALS患者的角度对机器人辅助系统的技术承诺和接受度进行系统分析。方法:本研究采用前瞻性队列研究。 Participants were only included if they had received a medical diagnosis of ALS. Data collection took place via an online questionnaire on the Ambulanzpartner Soziotechnologie internet platform. Technological commitment was measured using the Neyer short scale. Furthermore, a multidimensional questionnaire was specially developed to analyze participant acceptance of robotic arm assistance: the Acceptance Measure of Robotic Arm Assistance (AMRAA). This questionnaire was accompanied by a video introducing the robot arm. ALS severity was ascertained using the ALS Functional Rating Scale--Extended (ALSFRS-EX). Results: A total of 268 people with ALS participated in the survey. Two-thirds of the participants were male. The overall mean ALS severity score was 42.9 (SD 11.7) points out of 60 on the ALSFRS-EX, with the most relevant restrictions on arms and legs (<60{\%} of normal functioning). Technological commitment ranked high, with the top third scoring 47.2 points out of 60. Younger participants and males showed significantly higher values. The AMRAA score was, again, significantly higher among younger participants. However, the gender difference within the overall cohort was not significant. The more limited the arm functioning of participants according to the ALSFRS-EX subscale, the higher the acceptance rate of robotic assistance. This relationship proved significant. Conclusions: People with ALS display high technological commitment and feel positive about using technological assistance systems. In our study, younger participants were more open to technology use, in general, and robotic assistance, in particular. Self-appraisal of technology acceptance, competence, and control conviction were generally higher among men. However, any presumed gender difference vanished when users were asked to rate the anticipated usefulness of the technology, in particular the robotic arm. The acceptance was also reflected in users' increased willingness to use a robotic arm as the functionality of their own arms decreased. From the perspective of people with ALS, robotic assistance systems are critical to promoting individual autonomy. Another key consideration in the development of future assistive technologies should be the reduction of caregiver burden. Trial Registration: German Clinical Trials Register DRKS00012803; https://tinyurl.com/w9yzduhd ", issn="2369-2529", doi="10.2196/18972", url="https://rehab.www.mybigtv.com/2021/4/e18972", url="https://doi.org/10.2196/18972", url="http://www.ncbi.nlm.nih.gov/pubmed/34874891" }
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