@Article{信息:doi 10.2196 / /移动医疗。9981，作者=“王敬婷和Howell, Doris和Shen，南平和Geng，朝晖和吴，傅磊和沈，敏和张，小燕和谢，安伟和王，林和袁长荣”，标题=“移动健康支持护理干预对急性淋巴细胞白血病儿童父母的准实验性设计前后研究”，期刊=“JMIR mHealth Uhealth”，年=“2018”，月=“11”，日=“19”，卷=“6”，号=“11”，页=“e195”，关键词=“急性淋巴细胞白血病;有效性;移动健康;移动电话;父母;背景:急性淋巴细胞白血病(Acute lymphoblastic leukemia, ALL)是儿童最常见的恶性肿瘤。照顾患有ALL的孩子对父母来说是一个挑战。为满足父母的需求，制定了一项移动保健(mHealth)支持性护理干预措施。目的:本研究旨在评估移动健康支持护理干预在情绪困扰、社会支持、护理负担、疾病不确定性、生活质量和知识方面的潜在有效性。 Methods: We conducted a quasi-experimental pre- and postdesign study from June 2015 to January 2016. In total, 101 parents were enrolled in the study, with 50 in the observation group and 51 in the intervention group. Parents in the observation group received the standard health education and were observed for 3 months. Parents in the intervention group received the mHealth supportive care intervention, in addition to the standard health education. The intervention consisted of 2 parts---an Android smartphone app ``Care Assistant (CA)'' and a WeChat Official Account. The CA with 8 modules (Personal Information, Treatment Tracking, Family Care, Financial and Social Assistance, Knowledge Center, Self- Assessment Questionnaires, Interactive Platform, and Reminders) was the main intervention tool, whereas the WeChat Official Account was supplementary to update information and realize interaction between parents and health care providers. Data of parents' social support, anxiety, depression, care burden, uncertainty in illness, quality of life, their existing knowledge of ALL and care, and knowledge need were collected before and after the 3-month study period in both groups. For the intervention group, parents' experience of receiving the intervention was also collected through individual interviews. Results: Overall, 43 parents in the observation group and 49 in the intervention group completed the study. Results found that the intervention reduced parents' anxiety (Dint(Post-Pre)=−7.0 [SD 13.1], Dobs(Post-Pre)=−0.4 [SD 15.8], t90=−2.200, P=.03) and uncertainty in illness (Dint(Post-Pre)=−25.0 [SD 8.2], Dobs(Post-Pre)=−19.8 [SD 10.1], t90=−2.761, P=.01), improved parents' social function (Dint(Post-Pre)=9.0 [SD 32.8], Dobs(Post-Pre)=−7.5 [SD 30.3], t90=2.494, P=.01), increased parents' knowledge of ALL and care (Dint(Post-Pre)=28.4 [SD 12.4], Dobs(Post-Pre)=17.2 [SD 11.9], t90=4.407, P<.001), and decreased their need for knowledge (Dint(Post-Pre)=−9.9 [SD 11.6], Dobs(Post-Pre)=−1.9 [SD 6.4], t90=−4.112, P<.001). Qualitative results showed that parents were satisfied with the intervention and their role in the caregiving process. Conclusions: The mHealth intervention in supporting parents of children with ALL is effective. This study is informative for other future studies on providing mHealth supportive care for parents of children with cancer. ", issn="2291-5222", doi="10.2196/mhealth.9981", url="http://mhealth.www.mybigtv.com/2018/11/e195/", url="https://doi.org/10.2196/mhealth.9981", url="http://www.ncbi.nlm.nih.gov/pubmed/30455166" }