TY - JOUR AU - Jacob, Christine AU - Bourke, Steven AU - Heuss, Sabina PY - 2022 DA - 2022/10/6 TI -从测试人员到共同创造者-电子健康解决方案开发中成功患者参与的价值和方法:定性专家访谈研究JO - JMIR Hum因素SP - e41481 VL - 9 IS - 4kw -远程医疗KW -智能手机KW -移动电话KW -电子健康记录KW -公共卫生实践KW -技术KW -感知KW -健康教育KW -移动卫生KW -移动卫生KW -远程卫生KW -电子卫生KW -患者KW -患者参与KW -患者语音KW -患者赋权AB -背景:研究表明，患者参与最常在研究之初或测试现成的原型时进行，在其他阶段(如执行阶段)进行的较少。以前的研究报告称，在卫生服务规划和评估中，患者通常被赋予咨询作用，而不是决策作用。目的:本研究有两个目标:更好地了解将患者纳入电子卫生技术开发的挑战和机遇，以及如何克服已确定的差距的想法，并创建基于研究的端到端实践蓝图，可以指导相关利益相关者成功地让患者作为所有以人为本的设计阶段的共同创造者，而不仅仅是预先计划的原型的测试者。方法:对来自欧洲6个国家的20名参与者进行了深入的半结构化访谈。随后是一个焦点小组，以验证最初的发现。与会者包括所有相关利益相关者群体，包括患者专家、电子卫生专家、卫生技术提供商、临床医生、制药公司高管和健康保险专家。结果:本研究表明，让患者参与电子健康发展有助于提供不同类型的价值;即，确定未满足的需求、更好的可用性和可取性、更好地适应患者旅程、更好的采用和粘性、更好的卫生结果、倡导和信任、使命感以及更好的卫生公平和可及性。 However, the participants agreed that patients are usually engaged too late in the development process, mostly assuming a sounding role in testing a ready-made prototype. The justification for these gaps in engagement is driven by some prominent barriers, notably compliance risks, patient-related factors, power dynamics, patient engagement as lip service, poor value perception, lack of resources, mistrust, and inflexibility. On the positive side, the participants also reflected on facilitators for better patient engagement; for instance, engaging through engagement partners, novel approaches such as the rise of professional patient experts, embedding patients in development teams, expectation management, and professional moderation services. Conclusions: Overcoming the current gaps in patient engagement in eHealth development requires consolidated efforts from all stakeholders in a complex health care ecosystem. The shift toward more patient-driven eHealth development requires education and awareness; frameworks to monitor and evaluate the value of patient engagement; regulatory clarity and simplification; platforms to facilitate patient access and identification; patient incentivization, transparency, and trust; and a mindset shift toward value-based health care. SN - 2292-9495 UR - https://humanfactors.www.mybigtv.com/2022/4/e41481 UR - https://doi.org/10.2196/41481 UR - http://www.ncbi.nlm.nih.gov/pubmed/36102548 DO - 10.2196/41481 ID - info:doi/10.2196/41481 ER -