@文章{info:doi/ 10.21960 /32609，作者="Santos, Amanda D和Caine, Vera和Robson, Paula J和Watson, Linda和Easaw, Jacob C和Petrovskaya, Olga"，标题="肿瘤患者使用新型电子患者门户支持护理和治疗的经验:对加拿大阿尔伯塔省门户早期用户和非用户的定性研究"，期刊="JMIR癌症"，年="2021"，月=" 11月"，日="24"，卷="7"，数="4"，页="e32609"，关键词="患者门户;MyChart;卫生信息和通信技术;电子健康;个人健康信息;肿瘤;癌症治疗;加拿大;定性的;背景:随着当前临床信息技术在国际上的普及，患者门户在医疗保健中越来越多地被采用。 Research, conducted mostly in the United States, shows that oncology patients have a keen interest in portals to gain access to and track comprehensive personal health information. In Canada, patient portals are relatively new and research into their use and effects is currently emerging. There is a need to understand oncology patients' experiences of using eHealth tools and to ground these experiences in local sociopolitical contexts of technology implementation, while seeking to devise strategies to enhance portal benefits. Objective: The purpose of this study was to explore the experiences of oncology patients and their family caregivers when using electronic patient portals to support their health care needs. We focused on how Alberta's unique, 2-portal context shapes experiences of early portal adopters and nonadopters, in anticipation of a province-wide rollout of a clinical information system in oncology facilities. Methods: This qualitative descriptive study employed individual semistructured interviews and demographic surveys with 11 participants. Interviews were audio-recorded and transcribed verbatim. Data were analyzed thematically. The study was approved by the University of Alberta Human Research Ethics Board. Results: Participants currently living with nonactive cancer discussed an online patient portal as one among many tools (including the internet, phone, videoconferencing, print-out reports) available to make sense of their diagnosis and treatment, maintain connections with health care providers, and engage with information. In the Fall of 2020, most participants had access to 1 of 2 of Alberta's patient portals and identified ways in which this portal was supportive (or not) of their ongoing health care needs. Four major themes, reflecting the participants' broader concerns within which the portal use was occurring, were generated from the data: (1) experiencing doubt and the desire for transparency; (2) seeking to become an informed and active member of the health care team; (3) encountering complexity; and (4) emphasizing the importance of the patient--provider relationship. Conclusions: Although people diagnosed with cancer and their family caregivers considered an online patient portal as beneficial, they identified several areas that limit how portals support their oncology care. Providers of health care portals are invited to recognize these limitations and work toward addressing them. ", issn="2369-1999", doi="10.2196/32609", url="https://cancer.www.mybigtv.com/2021/4/e32609", url="https://doi.org/10.2196/32609", url="http://www.ncbi.nlm.nih.gov/pubmed/34822338" }